The spinal tap was negative and the only place that lit up on the bone scan was in her jaw, which wasn't a surprise. We're very glad that it doesn't appear to be anywhere else right now. I think the final test we have is the PET scan, which is supposed to be next Thursday.
We made the decision to start chemo on Thursday and got started the next day. The chemo reacts with the radiation, so she needs to get it on Friday nights to minimize the interaction with the radiation. She didn't seem to have any side effects from the chemo, which was good. The chemo she is getting right now is vincristine, actinomycin-D, and cytoxan. For the first round, she will get it once a week for three weeks, assuming that her biopsy comes back as rhabdomyosarcoma.
Just because she didn't have a reaction to the chemo doesn't mean that she didn't have an interesting night. We'll just say that the miralax that they've been giving her finally worked and that she doesn't tolerate her g-tube feeds when she's laying down. We went through four sets of sheets early in the morning.
April drove down Friday and Aunt Rosanna, Aunt Carmela, Uncle Tony and Uncle Phil all made the drive down yesterday. It's nice to see some family that we haven't seen for awhile, though Abby isn't interested in seeing them at all.
Abby has actually been in a much better mood since yesterday morning. She hasn't pulled off her pulse-ox and is mostly cooperating when they try to take her blood pressure and temperature. It's good that she's hopefully getting back to her old self, at least a little.
On the run
10 years ago
1 comment:
We are so happy for the good news. Hold on to God with all that you have. You all are in our prayers and thoughts constantly.
Try to rest. And remember I'm here if you need anything.
-Bethany Hill
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