Just can't stay away

We are currently on our second hospital stay since we were able to go home. Of course, both hospitalizations were for fever. She has some infection in the upper lobe of her right lung, so she's being treated with antibiotics, inhalers, and more chest percussion therapy. Thankfully they are using a vibration machine for the CPT this time and it is going so much better than the bopper. This last fever was the first one to scare me because she also had a lot of thick, yellow drainage and was having a lot of trouble keeping her oxygen saturation even in the low 90's. So this time we all made the trip to Little Rock. Tomorrow will mark a week that she has been in the hospital this trip. The last one was only two days.

I am thankful that Abby's oncologist came on call on Saturday. This is the first time that we have seen him in over a month so he is doing some extra testing. She finally got a blood transfusion because she was severely anemic and she seems to be feeling much better after that. Yesterday she also got IVIG again to help protect her against viruses. With the exception of one fever, she didn't have a reaction to it this time.

Abby had an echocardiogram today because her heart rate has been high ever since she got her trach. Pre-trach heart rates were around 110 while her post-trach rates are 150's and 160's. I am glad to report that her echo came back normal.

We also had ENT look at the tumor breakthrough that we have known for a few weeks had happened. There may be some things to come out of this, but for right now, she will be having an MRI tomorrow morning and we will go from there. We are hoping that she will be released from the hospital tomorrow and that her infection will continue to clear up and the fevers will stop. It would be really nice to spend a week at home - something that has not happened in the last 11 weeks.