Long Overdue Update

I apologize for not updating earlier.  For the most part, things have been relatively calm recently.  Abby's has still been doing her five days of chemo everything three weeks.  Her last round of chemo was very hard on her and she ended up in the hospital again the Saturday after Thanksgiving.  The truth is, we never should have left after her last chemo, but we thought she would improve when she got home.  We finally took her in due to pain and dehydration.  She was so dehydrated that her hemoglobin dropped two points after getting fluids.  The next day she spiked a fever and ran them on and off the next few days.

Due to desats after her decannulation, Abby had another sleep study in October.  Once again, it showed severe obstructive sleep apnea.  For her age, she should have had an AHI of <1 .5=".5" 50.="50." 6="6" 9th="9th" a="a" able="able" after="after" aggressive="aggressive" airway="airway" almost="almost" an="an" and="and" any="any" back="back" before="before" but="but" capping="capping" coming="coming" day="day" days="days" debulking="debulking" decannulated="decannulated" desats="desats" did="did" dilate="dilate" do="do" down.="down." e="e" effects.="effects." er="er" expected="expected" few="few" flap="flap" for="for" fter="fter" get="get" go="go" had="had" has="has" he="he" her="her" hers="hers" home.="home." home="home" immediately="immediately" in="in" level="level" meant="meant" medication="medication" more="more" nbsp="nbsp" needed="needed" night="night" not="not" november="november" of="of" on="on" open="open" other="other" oxygen="oxygen" p="p" perform="perform" picu="picu" put="put" r.="r." reduce="reduce" reducing="reducing" reinsert="reinsert" rem="rem" required="required" retraching="retraching" richter="richter" she="she" side="side" since="since" sleep.="sleep." so="so" spending="spending" start="start" still="still" stoma="stoma" surgery="surgery" swell="swell" swelling="swelling" t="t" than="than" that="that" the="the" to="to" trach.="trach." trach="trach" tried="tried" waiting="waiting" wanted="wanted" was="was" we="we" weeks="weeks" weren="weren" while="while" willing="willing" wonderfully.="wonderfully." worked="worked">
Thankfully both girls were able to enjoy trick-or-treating this year.  This was the first time they have gone and they both loved it.  We were worried about how Abby would do after being discharged the day before.  She did awesome and walked almost the entire way despite needing a transfusion badly.

We already have the Christmas tree up and Abby is so excited.  Every morning when wakes up, she says "It's Christmas Time!"  I can't wait to see her face on Christmas morning.