Sunday, September 9, 2012

Decannulation!

Abby had her trach removed September 2nd!  She went in for a bronchoscopy the Friday before and had a granuloma removed.  The bronch showed that part of her airway is still covered by the flap, but they didn't think it was enough to prevent decannulation.  She then had to keep her cap on for 48 hours while in the hospital, then they removed it and we stayed another day for observation.  So right now, she has a hole in her neck where the trach was and we wait for it to close on its own.  If that doesn't happen, it will have to be closed surgically.

Abby has been doing wonderfully with her trach out during the day, but is having some problems at night.  Some night she does great with no desats, but other nights she desats once an hour.  Because of this, she will have another sleep study on October 8th.  Depending on those results, we may have to try CPAP or possibly do another debulking to remove the excess tissue.

Abby is so excited to have her trach out and has to show everyone that she meets her "new neck".


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